Because of her background and years of service as a nurse, Gwen was realistic about her disease. She was always anxious to learn what other treatment options might be available. She knew that her ability to maintain hope was hinged to her ability to remain physically strong and active for as long as she could. During the winter of 2009 she participated in a program a the YMCA called Live Strong, sponsored by the Lance Armstrong Foundation. I was fortunate to participate in the program with her, and also saw the value of preparing for the worst while hoping for the best. This is a poem about that:
PREPARE FOR THE WORST
HOPE FOR THE BEST
HOPE FOR THE BEST
It’s a healthy thing to do,
preparing for the worst,
riding my exercise bike
with its heavy, steel flywheel
and automatic speedometer
that counts the miles I’ve
travelled from where I began
to where I remain;
and the only change in scenery
is The View on the TV.
It’s a healthy place to be,
hoping for the best,
riding my fancy bike
around the circle of life
with my group of friends
who tell their stories
and cry their tears
and laugh out loud;
as we mourn the missing
and celebrate those who remain.
John A. Bayerl, September, 2010
I attended a bereavement group this morning. The task we face in the group is not that different from the one Gwen taught me to face as her caregiver--how to remain grounded and somewhat stationary while at the same time learning to ride hopefully around the circle of life. There is a painful difference; no matter which bike I ride, I ride it alone. And, I mean no disrespect to my many friends. And, I remember and try to emulate this about my perfect partner. . . ." undaunted strength, unshakable courage, limitless hope and her characteristic, unflappable good cheer."
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